Family Centered Care

I am so excited about my upcoming presentation at the Stollery about Family Centered Care, and so happy that I met Sue last night!

Today I am so thankful to have Jaina in my life, for all she has taught me, and everything that she brings to this world. I love her so much, I hope she knows how much.

We lost 3 more staff last month, as they graduated from their RT program at NAIT. So sad (but also proud) to see them go off into the "real" world. We will miss them and hope that they keep in touch!

Here is an amazing article... http://www.theglobeandmail.com/life/facts-and-arguments/our-life-with-and-without-our-daughter/article1529653/

Trach Clinic

J had trach clinic today and all is well. Her pulmonologist thinks she is too tired, so would recommend that we put her on the vent during her afternoon nap - noon until 2pm, so that more of her energy can go into growth and development, rather than just spending all her energy to breathe.

But she is doing really well - and we are so proud of her! She has come a long way since those first scary beginning months where we very nearly lost her numerous times.

My Road

In Jan 2006, when I was pregnant with our first child, we were involved in a catastrophic collision, that left both me and my husband with major injuries. But most of all, my unborn child who was 20 weeks old, my husband had just felt her kick earlier that day, she very nearly died. And as a result has a severe anoxic brain stem injury, or otherwise known as severe cerebral palsy. So that is how our story began, and now we are trying our best to live our lives and be a strong, loving, supportive, family.

We added a sibling for J in March 2009 - little A was born a healthy 8 lbs, and she is a wonderful sister to J. This has added much joy to our lives, and a few more complications.