J had trach clinic today and all is well. Her pulmonologist thinks she is too tired, so would recommend that we put her on the vent during her afternoon nap - noon until 2pm, so that more of her energy can go into growth and development, rather than just spending all her energy to breathe.
But she is doing really well - and we are so proud of her! She has come a long way since those first scary beginning months where we very nearly lost her numerous times.
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